STAGE 4 FUSION POSITIVE RHABDOMYOSARCOMA
January 2021, Sage had complained of leg pain as he was trying to fall asleep one night. I went in to assess
his leg to find a hard solid lump on his calf. Fast forward to landing about a 2 week inpatient stay at the
Children's Hospital as he was diagnosed with Fusion Positive Rhabdomyosarcoma. He started
chemotherapy that week.
His treatment plan was 66 weeks. 42 weeks of frontline treatment, 6 weeks of photon radiation. Another week of Proton SBRT radiation at the Mayo clinic and 6 months of maintenance chemo. Our 66 weeks was not easy. Sage was 3½ at the time of diagnosis. He was still so little and his body had to fight a lot, which lead to lots of fevers and lots of neutropenia. It’s impossible to sum up the trauma and pain we all faced the past 2 years, but we are honored to have Sage as a superhero with Kids on Carousels.
As we continue to heal as a family Sage will have scans every 3 months. Cancer at any age is devastating, but as a mother to watch your child go through something unspeakable with feeling helpless will turn your world upside down.
They say a picture is worth a thousand words and after this season, I believe nothing less. Our story is still being wrote. These pictures can speak for me, as our life went through the motions since diagnosis.
His treatment plan was 66 weeks. 42 weeks of frontline treatment, 6 weeks of photon radiation. Another week of Proton SBRT radiation at the Mayo clinic and 6 months of maintenance chemo. Our 66 weeks was not easy. Sage was 3½ at the time of diagnosis. He was still so little and his body had to fight a lot, which lead to lots of fevers and lots of neutropenia. It’s impossible to sum up the trauma and pain we all faced the past 2 years, but we are honored to have Sage as a superhero with Kids on Carousels.
As we continue to heal as a family Sage will have scans every 3 months. Cancer at any age is devastating, but as a mother to watch your child go through something unspeakable with feeling helpless will turn your world upside down.
They say a picture is worth a thousand words and after this season, I believe nothing less. Our story is still being wrote. These pictures can speak for me, as our life went through the motions since diagnosis.
